The treatment of Coeliac disease has come into question after staff have disputed whether NHS money is used effectively.

Guidelines recommend that patients suffering from the disease should have a yearly “follow-up” but some are denied this because their NHS trust has cut the service.

Video: Dr Manpreet Bains explains the science behind Coeliac disease.

According to Dr Manpreet Bains from the University of Nottingham, advice is currently based on the doctors’ point of view and doesn’t take into account what patients think.

Researchers at the University of Nottingham are carrying out a study into the treatment of Coeliac disease.

They’re interviewing staff involved in the management and treatment, as well as patients living with it, to find out if there’s any way in which the care quality could be better.

“The Evidence is quite weak”
Dr Manpreet Bains, University of Nottingham

At present, there is limited research for NHS staff to use when making recommendations.   Dr Manpreet Bains is one of the researchers carrying out the new study into Coeliac disease treatment.

“The evidence is actually quite weak so they’re making the most out of the best [research] they’ve got”.

She is also concerned  that there is no data currently available on how many people are actually attending their yearly checkups.

Lydia Meredith talks about her own experience of Coeliac disease.


The National Institute of Health and Care Excellence (NICE) believes patients should get diet and nutrition advice as part of the yearly checkup.

However, the gluten-free charity Coeliac UK believes more needs to be done to support sufferers.

In a statement it said “It is important that a dietitian is available to provide individual assessment and advice especially for children and patients with complications”.


  • Diarrhoea
  • Abdominal pain
  • Bloating
  • Flatulence (passing wind)
  • Indigestion
  • Constipation
  • Vomiting
  • Weight loss
  • Skin rash

The public are recommended to visit their GP if they are concerned about any of these symptoms.

The University of Nottingham’s study is ongoing and will publish its findings in the near future.