A woman from Nottingham who is the only person in the UK suffering with an extremely rare disease that is attacking her immune system is in urgent need of a lung transplant.
Sharon Widdowson, 46, from Arnold suffers from Clinically Amyopathic Dermatomyositis (CADM). It affects only two in a million people and only 85 people in the world have been diagnosed with it.
The mother of two who writes a blog says: “The consultants told me I’m a guinea pig because they don’t know where the disease came from. When I asked doctors what would happen if I got a new set of lungs, they told me they didn’t know whether or not the disease would attack them. They can’t tell me yes or no. It’s a risk I have to take.”
Friend and colleague Gill Harte will raise funds for the transplant with a fashion show at the Polish Club, Sherwood Rise, Nottingham on March 8.
Audio: Sharon Widdowson’s CADM diagnosis experience.
Cynthia Hartshorn, Sharon’s mother, says: “I felt shock and horror in the hospital and I had to ask a lot of questions and write them down beforehand so I didn’t forget anything. Sharon had to go to hospital every day and had to do so many tests.”
Gill Harte added: “I can’t believe it’s been 12 months since the last event we did for Sharon. Everyone was so generous and hopefully this year will be as good. If this will help Sharon, then I’m happy to do it.”
Tickets will be priced at £5 and proceeds will go to the Freeman Heart and Lung Transplant Association.